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Random Thoughts
For People Who are Living with Chronic Pain

(If these seem a little harsh please let me know. I would like to explain to you what is harsh.)

man.thinking.OhReally

It is only Pain.

I know you are thinking "That is easy for you to say", "You don't know what I'm going through", "My pain must be worse than yours".

I don't know you might be right.

What I do know is that pain is only a signal transmitted by the nerves up to your brain. It is what your brain does with that signal that determines whether or not the pain is horrible, hideous and horrendous; or only annoying and bothersome.

Learn to control your brain and learn to control your pain.

Start by saying the words, "It is only Pain"







Random Thoughts
For People Who are Living with Chronic Pain

(If these seem a little harsh please let me know. I would like to explain to you what is harsh.)

surprised.woman.thinking

Do you feel anxious?

Anxiety is a common problem for people with chronic pain and uncontrolled anxiety will make your pain worse. Anxiety increases your stress hormones such as cortisol and neurotransmitters like glutamate. These hormones and neurotransmitters cause you to feel the pain sharper, quicker, and harder. It makes your pain more difficult to deal with.

Everyone who is living with chronic pain
should talk to their doctor about anxiety.

Learn more about Neurotransmitters at
Neurotransmitters Affect the Pain You Feel.







What Works for Me...... and What Works for Others

Inversion tables

This is one of my favorites when my back is really hurting. I usually lay on it for 15 to 20 minutes at an angle of about 30°. Any longer than that and my back gets so stiff that it is difficult for me to get going again. If I am on it for any more than 10 minutes I have to go easy when I first get up until things get settled into place.

What it does for Me I think what it really does for me is take the pressure off of the facet joints at all levels of my damaged vertebra. I don't have any radiculopathy or sciatica but I think it would be very helpful for that type of pain as well.

My Best Advice My best advice for people using an inversion table is to go low and slow. For people with arthritis in their back a low angle for a few minutes is a good place to start. Then once you get a feel for it you can increase the angle and/or time as much as is comfortable for you. Hanging upside down is for teenagers.

Learn more about inversion tables at
How Do Inversion Tables Work? and Can They Help My Back Pain?







Random Thoughts
For People Who are Living with Chronic Pain

(If these seem a little harsh please let me know. I would like to explain to you what is harsh.)

man.thinking


Have you talked to a doctor about your pain? Have you gotten a second opinion? Is there anything that can be done? Have you already done that? Have you chosen not to do that?

At some point you need to accept that your
pain will never go away.

At some point you need to start getting on with your life.







What Works for Me...... and What Works for Others

When Nothing Helps You just have to Get On with Your Life

Sammy from Eire

Hi there, I had back surgery twice on the lower back (L4 and L5). I'm in constant pain, it took me a few years to learn to live with it.

It's an burden put upon me, maybe I was bad in my other life I really don't know. I have tried everything from tablets, to physio's, to pain clinic, acupuncture, tens machines, you name it and I have tried it.

There is no cure for this dreaded disease. I am bent over and gone sideways from it and I can tell you there's no cure for back pain. A person just has to get on with it.

Yours sincerelySammy

My Best Advice

But everybody has a different situation to deal with and it is important to try all of the recommended treatments before you decide that you have to live with it.







Random Thoughts
For People Who are Living with Chronic Pain

(If these seem a little harsh please let me know. I would like to explain to you what is harsh.)

Abdominal_curl



Work on your posture and and lose the gut.

Exercises to improve your posture and lose weight are always helpful.

Yes you can find some type of exercises that you can do.







What Works for Me...... and What Works for Others

TENS units

I have had several different TENS units is over the years and I guess they do help me a little bit. But, I never seem to use them consistently over long periods of time. Every time that I dig out one of my old ones, or buy a new one, it really does seem to help for a while. But, only for a while.

What it does for Me I think it may be the distraction of having a new toy and being able to change the way my back feels. Just changing the way it feels for a while is a good thing.

But when I get used to it, and the new wears off, and it gets to be too much of a hassle fooling with the sticky pad electrodes and wires, and I quit putting it on. Then it lays on top of the dresser for a while. Then it is put into a drawer for a while, and eventually ends up in a box in the closet. Until the next time.

My Best Advice Give it a try!! It is very difficult to tell who a TENS unit will help and the risk of side effects is very low. If nothing else you can turn it up high enough to stimulate some endorphins to help control your pain.

Discover more about TENS units at TENS Unit or E-Stim for Pain







Random Thoughts
For People Who are Living with Chronic Pain

(If these seem a little harsh please let me know. I would like to explain to you what is harsh.)

Talk about the economy. Talk about religion. Talk about politics. Talk about your hobbies. Research and learn about something that interests you. Share what you have learned with your family and friends. Don't talk about your pain.







What Works for Me...... and What Works for Others

Emotional Freedom Therapy

Wendy says

Okay, before you scoff, EFT (Emotional Freedom Therapy), while typically used for issues like stress, anxiety, depression and other psychological states, it has amazing effectiveness on physical pain!

I haven't used it on my back pain lately, because I haven't had any, but I have used it recently for headaches and stomach aches. I love it. Google it. There's tons of information on it.

EFT is along the lines of acupunture in that it relies on energy in the body and meridian points. But instead of using needles, you tap with your fingers on various meridian points. You use affirmative statements to lock in whatever it is you want to change. You can also use complete protocols, like I would suggest for back pain, to effectively eliminate the pain from your body.

It's amazing. And it works.

My Best Advice

Everybody is an experiment of one. Everybody is different and we are all trying to find the right combination of stuff for our combination of stuff. This sounds great and with no side effects.







Random Thoughts
For People Who are Living with Chronic Pain

Somebody said that it couldn't be done

               and he with a chuckle replied,

"That maybe it couldn't, but he would be one

               that would not say so till he tried"

He buckled right in with a bit of a grin.

               He just took off his coat and went to it.

He started to sing as he tackled the thing

               that couldn't be done, and he did it.







What Works for Me...... and What Works for Others

A Lumbar Roll

Your spine was designed to have a shallow curve in the small of your back. When driving or sitting for long periods of time it is easy to lose that lumbar curve. You need to have something to support your lumbar spine. The Internet is full of different little cushions for your chair at work, or even just a small pillow can be enough to relieve low back pain.

What it does for Me

My back really needs lumbar support whenever I'm sitting and sitting on bleachers for extended periods of time is nearly impossible. I have a small towel laying in the front seat of my truck. I roll it up and stuff it behind my back whenever I am driving for more than just a few minutes. I use a standup desk at work so that I never have to sit. My favorite chair at home is one that I made and it has so much lumbar support that no one else likes to sit it.

My Best Advice

Everybody is different so you need to find out what works for you. Start off easy though because it is easy to get too much. Experiment with a rolled up towel or small pillow behind your back whenever you find yourself sitting for more than a few minutes.







Random Thoughts
For People Who are Living with Chronic Pain

(If these seem a little harsh please let me know. I would like to explain to you what is harsh.)

Be as active and exercise as much as you can. We all have limitations, but within those limitations there is still a lot that you can do. Everyone has things that they can do. Focus on what you can do and then get up off the couch and get started.







More from Bionic Kate

After viewing the electrodes in my brain on xray, I know why they call them DEEP brain implants. To say the image gives me occasional pause would be an understatement. The decision to have the surgery wasn't a light one.

A freak accident involved twisting. The pain was severe and the doctor visits, medication, physical therapy etc began. 30 minutes just to get out of the car. You know... anyone with extreme back pain understands.

Then discs out, spine fused which actually helped much of the creepy slipping, sliding, popping, tearing in the low back. But the verdict was in. Inflammation had taken up residence and wasn't moving out. In fact, it was getting worse.

The US government has since ruled that implants can be used for Parkinson patients only. But I am one of the success stories from using it to control chronic spinal pain. (Parkinson patients only have 1 electrode which is implanted in a different area of the brain.)

Not to say this is a panacea. I had to give up my beloved mortgage company. Ice is part of my daily life.

But I participate in our family. I go to the gym and walk -slowly- on a treadmill. Yesterday I took a stroll around our neighborhood and dropped off someone at the airport. I have since created and author 3 websites that I work on daily. I don't take any of this for granted.

Kate

My Best Advice

This might not be for everyone but it is certainly worth investigating.







What Works for Me...... and What Works for Others

Deep Brain Implants

From Bionic Kate

No I'm not kidding. I have two electrodes inserted deeply into my brain connected to two implanted battery packs. The electrodes have two functions. One partially blocks the pain messages between the brain and the targeted left leg. The second electrode increases endorphin levels.

Three questions I am frequently asked:

Do the batteries need changing? Yes, but they last for years before they run out of juice.

Do I set off security alarms. Not yet. :) I have a letter from my doctor that I keep with me when I fly.

Do they help manage the pain? Yes. I have been told I received better than expected results. Since the initial injury, this is the one and only time I've heard that statement!

One hitch. Before I get a haircut, I ask the stylist if she's squeamish. Obviously, the surface of my skull is full of funny lumps and bumps from connecting hardware.

Random Thoughts
For People Who are Living with Chronic Pain

(If these seem a little harsh please let me know. I would like to explain to you what is harsh.)

Your family loves you and they want to help you but there is little that they can do to really control your pain. Don't bother them even more by complaining constantly. They already know you have pain.







What Works for Me...... and What Works for Others

Laughter Therapy

This is one where I have only fiddled around the edges. Not because it doesn't work, because I believe that it does help to reduce pain. But, because there has never been a group close to where I live and the whole concept seems a little bit weird to me.

What it does for Me

I do have a couple of funny web pages that I visit often for a few minutes of humorous distraction when I am surfing the web. Mostly political and editorial cartoons like townhall.com, and theweek.com

Sometimes, when I think about it, I make myself smile. I find that even though my back pain does not go away smiling makes me feel better about it.

If I ever live somewhere that there is a Laughter Therapy Group I do think that I would go in to try and learn more about it. Once you get past the weirdness and self consciousness it might be fun.

My Best Advice

At least think about.

Read some articles and search the Internet to find out what is available in your area. Do a little bit in private where you can be as weird as you want and nobody knows. It may not make you pain free, but I bet it will make you feel better. You can start with our web page at Laughter Therapy, It is all Good







Random Thoughts
For People Who are Living with Chronic Pain

(If these seem a little harsh please let me know. I would like to explain to you what is harsh.)

You don't think distraction won't help to control your pain?

Imagine for a minute if you are sitting quietly in your living room watching television. When suddenly your television set bursts into flame. You would suddenly be busy calling the fire department, trying to put out the fire, getting the children out of danger, etc. For those few minutes when you are dealing with the emergency you will not notice your pain.

Think about what that means.

It means that if you can focus your brain on something besides your pain, your pain will become an annoying discomfort in the back of your mind.







What Works for Me...... and What Works for Others

Physical Therapy and Acupunture For Back Pain

Lesley in Sydney says

I've had back pain on and off for years. Sometimes it disappears for months on end, but then comes back. I think it is probably mostly caused by stress.

I'd had some success with osteopathy in the past, but nothing was working and the pain had gone into my feet and I could hardly walk. No-one could diagnose me, until I was lucky enough to be recommended to Sarah Key - famous physiotherapist and author of the The Back Sufferers Bible amongst other things. She said I had a curvature of the spine and one leg longer than the other. She cured my foot pain in one treatment, she and physios who have trained with her use a wonderful massage using their feet which releases the vertebrae and I've been using her back block method ever since with fantastic results.

I also find keeping up my core strength with pilates helps enormously, as well as regular acupuncture treatments.

Its a work in progress and I find if I get lazy with my back block or exercises I stiffen up again, but all these things really help. Now I only go to Sarah Key's clinic twice a year or so, and they say my spine has staightened out considerably.

Finally, relaxation. I think a lot of the pain comes from tense muscles, caused by stress. I do a lot of relaxation and meditation and it helps enormously. I'm reading The Secret at the moment and truly believe that mind over matter is very powerful. If we believe that our backs are relaxed and pain free and don't focus on the pain, we will be better. So I'm working on positive thinking and I never let my back stop me from doing anything. I love gardening for example, so nothing is going to stop me doing that. I think its probably beneficial in any case, as I have heard from many sources that the best thing is to keep moving.

Basically, I think that the best thing is to take control over your own health and body, and work at it, with exercise, relaxation. And never give up.

My Best Advice

Exercise, stretching and strengthening can help everyone. But you need to be careful because it is easy to overdo and make things worse. Whenever you're starting a new activity began gently and progress slowly.







Random Thoughts
For People Who are Living with Chronic Pain

(If these seem a little harsh please let me know. I would like to explain to you what is harsh.)

All medications have risks. Do not take more than is prescribed or recommended and discuss any side effects with your doctor.

Pain does not kill people but taking too much medication does.







What Works for Me...... and What Works for Others

Control Your Weight

This is a big one (pardon the pun). Obesity is so problematic in so many different ways that if you have a weight problem it deserves your full attention. Adipose tissue (fat) produces inflammatory chemicals that contribute to the inflammation and pain everywhere in your body. It makes it difficult to exercise and enjoy the many aspects of a happy life.

A small weight loss of even 10 or 15 pounds can make a difference. If you are extremely overweight getting down to a normal weight will change your life.

What it does for Me

Controlling my weight was never a concern for me........until a I got to be a about 50 years old. I changed careers to a more sedentary profession and I also think that my metabolism started to slow down.

I still believe that it is a calories in/calories out issue. If you are gaining weight it is because you are either, eating too much, or not doing enough. I try to manage my calorie intake and I do exercise regularly bicycling or on a treadmill. However, I am still probably 15 or 20 pounds overweight. I understand the struggle.

My Best Advice

If you think your weight is a problem start watching your diet and exercising regularly even a small weight loss can have big benefits.

If you are extremely overweight it is truly a life and death issue. Talk to your doctor, see a nutritionist, see a psychologist, develop an exercise program, and regain control of your life.








  


  

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  1. Random Thoughts
    For People Who are Living with Chronic Pain

    (If these seem a little harsh please let me know. I would like to explain to you what is harsh.)
    man.thinking.OhReally
    It is only Pain. I know you are thinking "That is easy for you to say", "You don't know what I'm going…

    Read More

  2. Random Thoughts
    For People Who are Living with Chronic Pain

    (If these seem a little harsh please let me know. I would like to explain to you what is harsh.)
    surprised.woman.thinking
    Do you feel anxious?

    Anxiety is a common problem for people with chronic pain and uncontrolled anxiety…

    Read More